Telenursing Using SKEDit To Educate Parents with Thalassemia Children
Abstract
Background: Excess iron levels and low hemoglobin (Hb) levels are one of the complications of Beta-Thalassemia. The implementation of education using WhatsApp is expected to increase parental knowledge of the illness and children to adhere to iron chelation therapy.
Objective: To identify the effect of the implementation of education using WhatsApp through the SKEDit application compared to using booklets on parental knowledge and medication adherence in pediatric patients with thalassemia.
Method: The study was quasi-experimental using pre and post-test with control group. The total sample was 61 respondents with purposive sampling technique. Parental knowledge was measured using a Parental knowledge about Thalassemia questionnaire and the level of adherence was measured using an indirect method known as 'Pill Count'. The data were then analyzed using the Mann whitney and wilcoxon test.
Results: There was a significant difference in the level of knowledge in the pretest and posttest on the intervention group (p: 0.001) and the pretest and posttest in the control group (p: 0.001). There was a significant difference in the level of adherence of the pretest and posttest in the intervention group (p: 0.028). There was no significant difference in the level of adherence of the pretest and posttest in the control group (p: 0.214). There was no difference in the level of knowledge between the two groups (p: 0.994). There was no difference in the level of adherence between the two groups (p: 0.987).
Conclusion: Providing education using WhatsApp through the SKEDit application and also booklets both effectively increase the level of parental knowledge and medication adherence of pediatric patients with thalassemia.
Keywords
Full Text:
PDFReferences
Andodo, C., (2019). Pemberdayaan Telenursing Menggunakan Aplikasi Skedit Untuk Edukasi Orang Tua Pasien Anak Dengan Talasemia. Tesis. Universitas Gadjah Mada.
Anderson, H. M., (2016). Dale’s Cone of Experience. Diakses dari www.queensu.ca/teachingandlearning/modules/active/documents/Dales_Cones_of_Experience_summary.pdf. Online 14 November 2018.
Armeli, C., Robbins, S.J., & Eunpu, D.L. (2005). Comparing Knowledge of ?-Thalassemia in Samples of Italians, Italian-Americans, and Non-ItalianAmericans. Journal of Genetic Counseling, 14, 365-376.
Aydinok Y, Kattamis A, Viprakasit V. Current approach to iron chelation in children. British Journal of Haematology 2014;165(6):745–55.
Badawy, S. M., Morrone, K., Thompson, A., & Palermo, T. M. (2017). Computer and mobile technology interventions to promote medication adherence and disease management in people with thalassemia. The Cochrane database of systematic reviews, 2017(12), CD012900. doi:10.1002/14651858.CD012900
Barhoumi, C. (2015). The effectiveness of WhatsApp mobile learning activities guided by activity theory on student’s knowledge management. Contemporary Educational Technology, 6(3), 221-238
Bowden, V. R., Dickey, S. B & Green, C. S. (1998). Children and Their Family; The Continuum of Care, Vol.1. WB. Philadelphia: Saunder Company
Canadian Nurses Association. (2005). Nurse One, The Canadian Nurses Portal Ottawa.
Dahnil, F., Mardiyah, A., & Widianti, A. (2017). Kajian Kebutuhan Supportive Care Pada Orang Tua Anak Penderita Talasemia. NurseLine Journal. Vol. 2 No. 1 Mei 2017 p-ISSN 2540-7937 e-ISSN 2541-464X
Foe, M., Treadwell, M., J., Yamashita, R., Lal, A. (2017). Factors Related to Iron Chelation Therapy Adherence in Young Adults with Thalassemia: A Framework from the Patient Perspective. Program: Oral and Poster Abstracts. Session: 901. Health Services Research—Non-Malignant Conditions: Poster I
Fortin, P. M., Fisher, S. A., Madgwick, K. V., Trivella, M., Hopewell, S., Doree, C., & Estcourt, L. J. (2018). Interventions for improving adherence to iron chelation therapy in people with sickle cell disease or thalassaemia. The Cochrane database of systematic reviews, 5(5), CD012349. doi:10.1002/14651858.CD012349.pub2
Gadsden, V. L., Ford, M., & Breiner, H. (EDS. . (2016). Parenting Matters: Supporting Parents of Children Ages 0-8. In National Academic Press. https://doi.org/10.18574/nyu/9780814729151.00 3.0010
Hahn, R. A., & Truman, B.I., (2015). Education Improves Public Health and Promotes Health Equity. Int J Health Serv. 2015; 45(4):657-658.
Hawsawi, Z.M., Saifary, M.H., Tarawah, A.M., Zolaly, M.A., & Hegaily, A.R. S. (2010). Experience with combination therapy of deferiprone and desferrioxamine in beta thalassemia major patients with iron overload at maternity and children hospital Al Madinah Al Munawarah Saudi Arabia. Journal of Taibah University Medical Sciences, 5 (1), 27–35.
Higgs D. R. (2013). The molecular basis of ?-thalassemia. Cold Spring Harbor perspectives in medicine, 3(1), a011718. doi:10.1101/cshperspect.a011718
Indanah; Yeti, K., & Sabri, L. (2013). Dukungan Sosial Meningkatkan Selfcare Behaviour Anak. Jurnal Keperawatan Anak, Vol.1 No. 2:113119.
Jin, J., Sklar, G. E. Oh, V & Li, S., (2008). Factors affecting therapeutic compliance : A review from the patient ’ s perspective. Therapeutics and Clinical Risk Management, 4(1), pp.269–286.
Ningsih, E.D., & Yulianti, T.S., (2015). Pengaruh Pemberian Pendidikan Kesehatan Tentang Bahaya Minuman Keras terhadap Sikap Remaja tentang Bahaya Minuman Keras Di Desa Pawisman Gedangan, Karanganyar. Jurnal Keperawatan GSH. Vol 4, No.2.
Osborne, R.H., Lourenco, R.D., Dalton, A.R., Houltram, J., Dowton, D., Joshua, D., Lindeman, R., & Ho, P. (2007). Quality of life related to oral versus subcutaneous iron chelation: a time trade-off study. Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research, 10 6, 451-6.
Pratama, A. N, W., Aliong, A. P. R., Sufianti, N., & Rachmawati, E. (2018). Hubungan antara Tingkat Pengetahuan Pasien dan Pengawas Menelan Obat (PMO) dengan Kepatuhan Pasien Tuberkulosis di Puskesmas Kabupaten Jember e-Jurnal Pustaka Kesehatan, vol.6 (no.2),
Qurbani, S., N., Reniarti, L., Chairulfatah, A., (2017). Serum Ferritin, Serum Nitric Oxide, And Cognitive Function In Pediatric Thalassemia Major. Paediatrica Indonesiana.
Safitri, R., Ernawaty, J., Karim, D., (2015). Hubungan Kepatuhan Tranfusi Dan Konsumsi Kelasi Besi Terhadap Pertumbuhan Anak Dengan Thalasemia. Jurnal Online Mahasiswa (JOM). Vol 2 No 2, Oktober 2015.
Silalahi, V., Lismidiati, W., & Hakimi, M., (2018). Efektivitas Audiovisual dan Booklet sebagai Media Edukasi untuk Meningkatkan Perilaku Skrining IVA. JURNAL MKMI, Vol. 14 No. 3,
Thanarattanakorn, P., Louthrenoo, Orawan, Sittipreechacharn, Somjai, Sanguansermsri, Torpong. (2003). Family Functioning in Children with Thalassemia. Clinical Pediatrics; Jan/Feb 2003; 42, 1.
Wahyuni, Z., Rahayujati, B. T., & Hakimi,. M. (2017). Pengaruh layanan pesan singkat terhadap pengetahuan dan intensi menyusui di kabupaten Purbalingga, Jawa Tengah. BKM Journal of Community Medicine and Public Health. Volume 33 Nomor 5.pp 261-266.
Refbacks
- There are currently no refbacks.